Today is Day 21 of the 31 for 21 blogging effort to increase awareness about Trisomy 21.
Everytime I go out with Yirmiyahu and pull out his bottle, I get curious looks and if the person is close enough to me, they ask me about it. Here’s why:
It looks a little bit different, doesn’t it?
After spending weeks working to get Yirmiyahu to be able to exclusively nurse, after a couple of weeks I saw that he didn’t seem to be getting enough. I still don’t know why this is – maybe I didn’t have enough milk, but I think it’s something else. Unfortunately I don’t have any professional feedback on this so I’m just guessing. Anyway, since my efforts to remedy this on my own weren’t working, I agreed to the suggestion that we give supplemental bottles.
The bottles were great – I was able to see how much he was getting and that was reassuring, as was seeing the return of wet and dirty diapers. But something more troubling also presented itself. When I had taken him to the doctor as well as the physical therapist just three weeks before, they had both commented on how good his mouth closure was. Since infants with Trisomy 21 have hypotonia and larger tongues, the combination makes it harder for them to keep their tongue in their mouth. I credited Yirmiyahu’s good mouth closure to nursing.
However, within two weeks of a regular bottle, his tongue began sticking out a lot more frequently. This isn’t a surprise, since sucking on a bottle requires a baby to thrust his tongue forward, and nursing requires him to pull his tongue inward. But surprise or not, it was disturbing to me – was this the price I had to pay to help him gain weight? I was feeling stuck between a rock and a hard place, when a friend suggested the Haberman feeder.
The Haberman feeder was created for babies with feeding difficulties, but I think it’s a good choice for all babies. It’s the only bottle that a baby has to use his mouth in a similar way to breastfeeding. There are a number of benefits to this, but the one that most interested me was that it would help Yirmiyahu build his oral motor strength, just like nursing.
Now, getting him to drink from this wasn’t so easy. While he could finish a five ounce bottle in twenty minutes or so, it took him four hours to drink the same amount the first time we tried this bottle. This was problematic because we needed to get his weight up, and for a few transitional days I gave him feedings from regular bottles as well as from the Haberman to be sure he was getting an adequate amount to eat, while giving him a chance to learn how to eat from this.
However, we got through that period and have been using just this bottle since then. Just as quickly as we saw his tongue begin to stick out more, we’ve seen it go back to how it was before. This would take a lot of speech therapy to overcome if we stuck to the regular bottle, so it’s a big savings in time and energy!
Another benefit is that excess air being gulped in along with the milk is eliminated due to the bottle design. Yesterday I happened to sit down at the park bench next to the school nurse and she asked me why we didn’t burp Yirmiyahu a few minutes after he started drinking his bottle. I hadn’t consciously thought not to burp him, it’s just that he didn’t need it.
Here’s a short clip of Mandy Haberman, the designer of this bottle, showing how it works:
The disadvantages to this bottle that I’ve experienced are:
- Cost – it’s not cheap! We spent 160 shekels on this, which at the current exchange rate is over $40.
- No lid – when you travel with this bottle, there’s no lid to prevent spilling. I haven’t found much leakage to be a problem as long as there’s no milk in the top part of the bottle, since it required suction to get it out. But when there is milk in the top reservoir, I just wrap a cloth around it in the diaper bag to prevent any leaking and that seems to work fine.